Thursday, March 12, 2009

Philidelphia . . . 5 visits in 5 days

It's 9:35pm and I'm sitting next to my Riley Roo. It's great to see her without her IVs. She now takes all her medicine by mouth. I brought Teddy and Aedan here tonight so they could spend the night with their father. Autumn and my mom came with us too. Autumn amazes me how she takes care of her "sister" as she now considers Riley her sibling and not her cousin anymore. Riley is still attached to Autumn and Autumn is so patient and kind to her. This is a stark contrast to what Autumn's typical behavior is like, impatient, hyper, stubborn, and well annoying at times.

We got some answers today. Riley tested positive for the Rota virus which is a stomach bug. This virus traveled to her brain (very rare) and caused the swelling and also a mini stroke. She still cannot walk by her self, her left side is affected the most. She will start therapy in a pool tomorrow on the seizure floor here at CHOP. Today I got a little emotional today and blamed myself forgiving her the virus. The Saturday before she got it I had the stomach flu. I know I shouldn't blame myself but I can't help it.

Tomorrow I wil be back for my 6th visit in 6 days. She's worth it, she's my hero.


Lorrie said...

I following your blog for the one reason...I have a 10 year old with ADHD, PDD-NOS, ODD...nuff get it.

Lorrie said...

Well maybe I've got the ADHD...I mean I'm following your blog for the following reason...I have a 10 year old with ADHD, PDD-NOS, and ODD...nuff get it.